Can we change the future?
[low pitch] da da dun da-dunga-da-dun, da-da da dun da-dunga-da-dun; [high pitch] booooooo-weeeeee! booooo-weeeee...
That was, of course, the unmistakable opening bars of the Doctor Who theme tune. While many were debating the implications of a female Doctor (answer: the bit you find unbelievable about someone travelling through time in a police phone box is that she’s a woman?) the dyspraxia community was understandably excited about her sidekick, Ryan.
Yes! What a start to Dyspraxia Awareness Week.
I will shamelessly do anything to link this blog to popular culture, so I’m going to do some time travelling and try to improve The Boy’s future. A while back, some wonderful adults with dyspraxia responded to my request to share what their parents did well and what they wish they’d done more of during their childhood and youth. Some were public in their response, others sent private messages. I’ll keep all anonymous but I’m incredibly grateful to them.
Here are my parenting tips based on what they told me ... in no particular order:
Encourage independence as much as possible
Allow the child to find their own way of doing the things that they find difficult and only intervene when they’re overwhelmed. Gradually, relinquish more control to them and don’t rush them.
Fight their corner
Whether it’s school, CAMHS, whoever, get them all the support you can whilst not contravening the independence rule.
Encourage what they’re good at...
If they show a natural flair for something and / or really enjoy it, find ways to get them to pursue it. A subject enjoyed at school could become a career, for example. Create the environment in which they can thrive.
...but don’t force things on them
Ok, here I think some perspective is needed. Yes, don’t force (eg) football or skipping or A-level maths, but do ensure they remain active (swimming and Junior Park Run for The Boy) and do aim for at least decent numeracy. As adults they’d be far more annoyed with us if they were physically unfit or diddled out of money.
Treat them the same as siblings
This is a tough one for balance. The joy of teaching my 4yo to ride a bike was tempered by his 7yo big brother still with stabilisers (thank you, Ryan, for your getbackupability). The impact on both parties needs to be catered for. But the dyspraxic child shouldn’t be excluded.
Be prepared on the mental health front
Judging by what people told me and the Dyspraxia Foundation’s survey results this week, bouts of mental health difficulties - especially anxiety - border on the inevitable. Here I have some work to do. It’s easy to say “do all you can to prevent” and “provide them with the resilience for when” and “early intervention” and “watch for the signs”, but what does that mean in practice? Perhaps some research and a future blog.
Be open...
Don’t try to hide what they struggle with or get them to ignore their condition. But equally, don’t let them become ruled by their condition. This might sound like a paradox but their identity is theirs; dyspraxia is just part of it. It’s not the other way around.
As parents we’ll never get it completely right, but hopefully we can get it less wrong and provide our children with their best future possible.
This is just a summary of people’s sometimes extensive responses. I owe an enormous debt of gratitude to my future-travelling companions. I hope the fact that they’ve helped so much provides some recompense for their candour.
Let’s play out with the theme tune:
[low pitch] da da dun da-dunga-da-dun, da-da da dun da-dunga-da-dun; [high pitch] booooooo-weeeeee! Booooo-weeneee...
Thank you so much for this blog! In Canada, dyspraxia is woefully under-diagnosed, and not only did it take until my daughter was 8 to even get a firm diagnosis, but we are still dealing with doctors who have never heard of the condition and teachers who refuse to accept I am not just making excuses for my child. It's especially frustrating, as her case is mild, to hear "there are just so many other children who need way more help than she does." Any and all information I can get from other sources, is SO very helpful, and I appreciate the time you put into sharing! :)
ReplyDeleteWow! Thanks Nolee; that’s so nice to hear. I’d always thought of Canada as being very forward thinking with a great health service. I still do but it’s disappointing to hear that the dyspraxia side of things is playing catch-up.
DeleteI don’t think we’re far ahead in the UK if I’m honest. Our son got diagnosed at 4 but that’s thanks to an observant, knowledgeable mother and other family members. We had to push and know what strings to pull. Here we were lucky as many aren’t diagnosed until adulthood.
The Dyspraxia Foundation is small but excellent with a great helpline. Hopefully you have something similar over there?
Best of luck and thanks for reading my blog. My intention was always to connect with other parents and it’s been a joy to do so - also to come across so many helpful adults with dyspraxia. The above blog is theirs, not mine!
Just discovered your blog! I'm mum to another boy, 9 year old dyspraxic and a 6 year old girl who also has dyspraxia. A lot of what you say rings true for me and I'm glad to find your blog! I shall keep checking back.
ReplyDeleteThanks so much Julianna. That’s great and wonderful of you to take the time to comment. You can follow me on Twitter (@dyspraxiadad) and I do recommend Gill Dixon (@gilldixtalktalk). She has two adult children with dyspraxia and gives amazing advice. I’m Dyspraxia Dad, but she’s “The Daddy” when it comes to all this. I’m learning as I go!
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ReplyDeleteBrilliant. So well written and informative. Thank you for making your advice points so clear for parents. My son is nearly 17 now and I was really pleased with the highlighting of Ryan's character in Dr Who. Everything you have said is absolutely essential for our children's development into adults. I look at my son and remember the little boy who got so anxious with change, struggled to write, got floppy when he was tired and as we all know the list goes on. But now I look at him and know he is amazing! Looking forward to reading more of your blogs. Thanks
ReplyDeleteThat's great to hear - not only that you like the blog but how well your son's doing! Thanks for reading and taking the time to respond.
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